About WillPower Foundation
Our Story
WillPower Foundation is the namesake of William Michael Burke, who was born in 2004 with a rare brain malformation called schizencephaly.
This condition limits Will’s gross motor skills significantly, which means that he cannot move about by himself and needs several adaptive devices to maintain a high quality of life.
Will’s spirit and determination to live a full life continue to drive and inspire WillPower’s mission and success.
In the words of Maria Burke, Will’s mother and WillPower Foundation’s Co-Founder, here is the story of how the WillPower Foundation began:
“In 2007, our three-year-old William Burke finally took steps on his own. Well, technically, he was assisted by a gait trainer, but it was the first time that no one was helping him to do it. I remember the moment vividly, Will was wearing this cute green plaid summer romper, his AFOs, and sneakers, and he literally went running for the basketball hoop set up in the PT room at Shriners Hospital. We spent the next 20 minutes playing basketball, which quickly became his preferred game. I was filled with tears, incredibly happy and just plain overjoyed.
That summer my husband and I thought, Let’s have a fundraiser for Shriners to thank them for all they have given us. We held a 3-on-3 adult basketball tournament, sold raffle tickets, and had a great picnic in our backyard for everyone after the tournament. It was a super day and tremendously successful for Shriners. We were delighted when we were able to present a check for over $7,000, a small token of our gratitude.
Eventually, our dear friends at Shriners once again helped us. They assisted in selecting a wheelchair for Will a TDX Spree, which gave him additional independence! His (and our) life changed even more with this newfound tool and we again found ourselves truly grateful for the lovely and deciated people at Shriners.
The next year we realized that we needed a new van to move this awesome chair and my cousin, Matthew Donohue, said, “Let’s have another fundraiser just like last year, only this year, let’s use it to start a foundation!” Matt spoke with a few of our friends and asked them to join us as we embarked upon this new journey. We knew many families in the same boat, whose lives could be made easier with a little bit of help. Soon after, we arrived at our mission and the WillPower Foundation was born. Today, the WillPower Foundation provides financial support that empowers Western Massachusetts families and individuals with different abilities to meet their unique needs.”
Board of Directors
Co-Chairs & Founding Partners
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Sarah Aasheim / Belchertown
Co-Chair “I’m passionate about supporting WillPower because I can see the positive difference that our work makes in the lives of so many people in our community. Even a small grant can have a huge impact on the quality of life of someone with different abilities.”
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Jack Fanton / Amherst
Co-Chair “As a practicing child Psychiatrist in the region, I know firsthand the unmet needs of our community. I support the WillPower Foundation to be able to help those in need when help is not readily available.”
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Craig Burke / Holyoke
Founding Partner “We lived through some trying times when Will was younger when advocacy and information were hard to find. We vowed to find a way to help other families make at least ONE thing easier.”
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Maria Burke / Holyoke
Founding Partner “I believe in WillPower because we help families caring for individuals with different abilities feel less alone and more empowered. WillPower gives people and businesses a way to feel great about directly supporting people in their community.”
Board Members
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Teresa Dooley-Smith / Amherst
“I do this work because I wholeheartedly believe in the power of compassionate action and how each of us has the ability to make a profound difference in our communities- one family and one child at a time.”
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Emily Leonczyk / East Longmeadow
“Our community is only as strong as our commitment to serving one another. I am passionate about our work because it honors all abilities and supports families where they need it most.”
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Chelsea McGrath / Northampton
“I am thrilled to be a part of the WillPower family! I’m passionate about helping families and individuals with different abilities access the services they need, and so proud of how WillPower helps people in our community.”
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Jeff Palm / Northampton
“I do this work to feel like I’m contributing to my local community. It’s important that we give funding and support directly to families for exactly what they ask for.”
Contact Us
WillPower Foundation
If you have any questions or comments, please don’t hesitate to reach out or simply use the contact form and we’ll get back to you as soon as possible.
Phone:
Hayley Procon, Executive Director: (413) 388-3909
Email:
info@willpowerfoundation.org
Mailing Address:
WillPower Foundation
P.O. Box 1244
Northampton, MA 01061-1244